A while back I wanted to write an account of Raising a Child With Down Syndrome.
Seventeen years ago when our first child Rex was only a few months old, our medical professional presented the news to us that our son had been born with Down Syndrome.
To be very precise, he said very bluntly, “your child is born with multiple abnormalities. He will be forever lacking in achieving his milestones. He will never have a meaningful life.”
The Reality of Raising a Child with Down Syndrome
It is my personal belief that delivering ‘bad news’ is a difficult thing for all of us. Birth of a newborn brings joy and fulfillment to a family. What a beautiful moment in your life announcing, “it’s a girl, it’s a boy……!!!” On the contrary, the only thing we ever conveyed to our near and dear ones was about our son’s various medical tests and reports. But despite all odds and turmoil, Rex was growing up into a beautiful angelic baby. After spending many sleepless nights, fits of anger, attacks of depression, instead of asking, “Why me?” I started saying “Why not me?” It takes great courage to admit that you are scared, depressed and depleted. But if I do not swallow my own anguish and be the one to step up for my child, who will? Yes, my family, my relatives and all my well-wishers wholeheartedly accepted Rex as a Special Child. I personally abandoned the word “Down’s Syndrome” in describing my son. Instead, I started calling him “Our Special Child”.
Below are some resources that will help you raise your Child Down’s Syndrome
It requires a tremendous amount of effort to raise a special child. Not only parents but your entire family is involved in this mission. In the last seventeen years, I have observed an incredible improvement in the attitude of our society. When I lost my husband seven years ago, it was all the more difficult to take the whole responsibility on my shoulders but there was strong support from my family and relatives. Nonetheless, my younger son Ryan who is just ten years old had mastered the art of taking care of Rex.
What I learned from my Down Syndrome Child
Rex taught me that happiness does not come from getting what you want but it comes from unconditional love and sacrifice. I have learned to accept my situation without bitterness. I embrace my day with grace and optimism. Loving Rex and Ryan unconditionally is the motto of my life. Last week I finished reading one book by Ellen Not ohm. In that, she has beautifully described the deeply wise words of Joshua Lineman’s A Parent’s Commandments. These words are indeed prophetic.
Today, I am happy to say that notwithstanding my unfortunate introduction to the “world of Down Syndrome and Autism”, my son Rex is doing beautifully. In spite of all his special needs, he is a well-adjusted handsome young man and most importantly he is the joy of my life.
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